LIFE IS WHAT YOU MAKE OF IT

Life is what you make of it, sometimes it is sad

Sometimes it is brilliant, sometimes it is bad

Make the most of everything, whatever it may be

Cos, if you don’t, you’ll regret not doing it, you’ll see.

Take a jump from a parachute, white water rapids, do

The only person who’ll ever regret not doing it is you

Make the most of every offer in life  that comes your way

It may not be available on another day

Travel widely, take some risks, it’s worth it, wait and see

I wish I’d taken risks in my life before MND!

Seek excitement, enjoy, make sure you have some fun,

There are opportunities in this life for each and everyone

OBSCURITY? HERE I COME.....

Obscurity is approaching, I can feel it in my veins

Muscles, they are wasting, my strength, I’ll not regain

Stretching out my arms is a feat no longer easy

Picking up light,empty cups? So hard I feel quite queasy

Going to the toilet is a marathon in the making

It’s also very scary, so, no chances I’ll be taking

Washing is a task that is no longer possible

About my inability I refrain from being irascible

These days my only remit is to find a new solution

To each little problem, though not all have resolution

Hours and hours are taken up with me scouring the net

Not always finding answers, though I won’t give up quite yet

If I didn’t have a purpose I think that I’d go mad

Sitting, daily, at my desk with my computer, oh, how sad

I set myself a goal which, when reached, it gives me pleasure

Though a cure for this disease would be something I would treasure

I think I’ll have to settle with being busy till my demise

As, hoping for a miracle is just, ’Pies up in the skies‘!